Maren's home. We actually came home on Wednesday. I apologize for not posting right away. I've had a slew of emotions running through me and I'm just not sure how to put them into words. Here's a shot:
When Maren was first diagnosed, before she was even born back in New Mexico, I pleaded with God to let her stay with us-- even if it were for just a little while. I knew she belonged to Him and that if she was taken, we'd be together for eternity, but I wanted her now. I wanted Henry to know his little sister now. I begged for her to come and stay and then prayed for the faith necessary to cope if that could not be.
I would bet that the parents of children with life threatening health problems offer similar prayers. I don't know why some kids live and others die. I don't know why some sick kids heal quickly and others take what seems like an eternity to get better and come home. I don't know why some kids heal completely, and others are faced with life-long challenges.
This I do know: I know that God lives and that He hears and answers every prayer. God has a plan. Because of this we may not always receive the answer we hope for, but we will be given what is in our eternal best interest.
I am happy and humbled that Maren is home. I thank God every time I look at her; every time she throws her head back and laughs when Henry pretends to fall in an attempt to get that very reaction; every time she sits on the counter and "helps" to prepare a meal; every time she rounds her mouth and says, "oh" to let me know she wants to watch a show.
I pray that we can keep her home. She had a follow-up at Children's on Friday. The great news is that her albumin levels actually increased a little, which makes the PLE issue seem like more of a non-issue. We're still waiting for one of the tests to come back. We go back in a week. If her albumin remains normal and the test is negative, we can pretty much assume that her protein issue was a fluke as hoped.
Less-than-great news is that her lungs are still wet, although she's getting large doses of Lasix 3x/day. We added a second diuretic to her drug regiment and we hope that the combination will keep her collection of fluid at bay.
Thank you everyone for your prayers. I really don't know how we could do this, especially the worst of it (which has passed... hopefully) without you.
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